Jamie's Page.... Welcome!!

I'll follow what everyone else seems to be doing lol, put my story here!


I started noticing alot of fatigue during the summer of 2006, but was told by my doctor in Eastern Oregon I needed to excersize more and eat better. Although i was doing that already, i tried harder. I moved to California at the end of that summer and never felt like i was really 'catching up' on my rest ya know? soo tired and achy all of the time, like a bad flu. December of 2006 I got a horrible urinary tract infection that ended up with me in the ER with a temp of 103.5. The nurse literally slapped me on the hand and said "you shoulda come in sooner!" and i thought to myself "Sooner when? it came on in a week!" Again, I didnt feel like my body was recovering, still sluggish and tired all of the time. I was starting to get shortness of breath, and finding it hard to do little things. At first I thought "man i must be gaining ALOT of weight or something, cuz i'm having a hell of a time getting around!!" it was terrible. I started noticing some blood after bowel movements, but it wasnt all of the time, and i thought it was just a hemmoroid from moving and packing and what not. no biggie. then i noticed in January that I had some very dark stools... like blackish... but didnt really realize that it was serious... just kept on. On March 1st i walked into my bank with my 3 daughters to deposit my check, and felt like i had ran the mile, couldnt breathe~ I passed out and hit the floor. At the ER they said i was dehydrated and sent me home, but i was having heart palpatations (for months but got worse) and other things and it wasnt adding up. 4 days later i was in the ER because i thought i was having a heart attack... that's when the smartest ER dr in the world asked me the golden questions "are you bleeding rectally? are you having black stool?" and then said "you're losing blood internally... we need to run tests" and i was terrified!!
By the end of March I had my diagnosis of Non Hodgkins Lymphoma, MALT type, stage 1E... i had a tumor in my stomach with a bleeding ulcer partially on it. they started me on the triple drug treatment and the ulcer was gone, but the ulcer still remained. I am still on Watch & Wait.. which is agonizing!!!
Since my diagnosis last year, i have had over 12 urinary tract infections, 1 staph infection, 2 foot infections, my thyroid went crazy and i'm being treated for that... and i've had other issues with bleeding and what not. Most people lose weight when they have Lymphoma... I have gained 31lbs!! grr. that's it for now i guess.