Parenting with Cancer

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Comment by littlemarysunshine on June 14, 2008 at 4:52am

Can I be negative and just say it sux? Man. Michael was really sick last week. And of course our daughter saw it all.....because it was about 6am. I tried to rush her off to school but she was questioning everything. And I just didn't know what to say. It sux.

Comment by Jay on June 13, 2008 at 2:09pm

Hello All Ive been on for a few months. My wife angie has cancer. We have a 6 year old girl(going on 15) and a 4 year old boy. The parenting part is not to bad these days the kids just know that mommy goes to the doctor alot. We have never tried to tell them. Family takes them for us when ever she has treatments or operations. Someday when they are old my Angie can tell them. Best wishes for everyone out there!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Comment by Jamie on June 13, 2008 at 1:28pm

Heya Jenna,
if you look directly above the box you type in on this page there are dates with my mug next to it lol.. just click in on the most recent date, i usually do it every day. then it'll open up to the daily discussion and you can just pour your heart out there. i'm sorry to hear that you're having problems in your journey, that's what we're all here for, supporting and holding eachothers cyber hand thru these times. sounds like you have alot on your plate and i'll keep you in my prayers and in my thoughts. i'm usually on all day monday thru thursday and then off and on friday saturday and sunday, so i'm usually available to talk if you need to. hugs and smiles to you!!
Jamie

Comment by Jenna on June 12, 2008 at 9:53pm

I hope I am right about this Jamie but do we just pop over every day (or most days in my case) and just write about where we are at and chat in general about stuff? If I'm wrong please let me know. Well until I hear different I will just update where I'm at now and then. I was so pissed last week because I got dressed, raced around like a crazy woman getting Jack to school on time so I wouldn't be late for chemo (mornings are really bad for my pain because I've usually not had medicine all night) anyway got to chemo and pharmacy wouldn't release my chemo drugs. My Oncologist had been away the week before and I had come down with another infection and needed antibiotics so chemo was put off until the following week. I was booked in to see my Oncologist two days later. Anyway bottom line is he ordered pharmacy not to release my chemo because I hadn't seen him beforehand, even though I was booked in afterwards anyway. I got the chemo nurse to get on the phone to him and beg him telling him I was fine but no, wouldn't budge. So I was that upset because I have had a few hiccups where I have had to put off my chemo for a week or two and I am so worried that it won't work properly if that keeps going on. Anyway I am definitely allowed to have it this Tuesday thank goodness but he has put me on permanent antibiotics as he said one of the drugs I'm on can cause infections. I am also booked in to see some of the top surgeons in the world on July 1st at Peter Mac Institute to see whether they think they can operate. My Oncologist who previously told me that it was inoperable has now asked me to go and see these surgeons as he said he now has another patient with exactly the same cancer and issues that I have and when the surgeons connected with my Oncologist said they wouldn't touch her (which is what they told me) the surgeons at Peter Mac would and did and were successful. Anyway it's a long shot, they won't operate if they find any tumors above my pelvis and if they do operate it is a huge op, they take everything, my uterus, my bladder, my rectum, you know everything in the pelvis. I have to have a bag to wee in, I already have an ileostomy but it will be made permanent into a colostomy and I will be laid up for at least 6 weeks. He said it is huge and the recovery involves rehabilitation. Anyway I will wait and see what happens, I may not even be eligible. Enough for today, except to say I feel really well and I'm loving every minute of it. It doesn't happen often but when it does it is just glorious. Take care everyone, love and healing to you all, Jenna xxx

Comment by Carex on June 12, 2008 at 1:45pm

A friend bought and showed me a book of poetry self published by a woman in my area. I thought that a few of the poems, especially those about parenting with cancer, were spot on.

http://www.musikids.com/glances/
"In 2003, when Lisa Flaxman was 38 years old, she was diagnosed with breast cancer. At that time, her children were six, four and one. Following the diagnosis, Ms. Flaxman, CEO of musiKids, went through two years of surgeries, chemo and radiation.

"Glances at Time" is a collection of poetry that chronicles her cyclical journey as a young mother with serious illness. Through her poetry, Ms. Flaxman connects with people who are battling cancer and demonstrates how writing can help in a difficult time. This book is for the patient, the friend, the family, the health care provider, the doctor, the psychologist - anyone who is or has been been close to illness."

Comment by Jamie on June 8, 2008 at 12:22pm

Hello Everybody,

Above are daily check in discussions for just about everyday, feel free to click on that discussio and join in and let us know how you are doing and let us know about you!! This is how we're trying to get to know eachother better here and offer better support! Thanks soo much for coming in to chat with us, look forward to getting to know everyone better and to offering support!!
Jamie

Comment by Jenna on June 6, 2008 at 10:28am

My name is Jenna I am new to this site and group. I am mum to a 20 yr old (shock, horror) and a 6 year old! I have colorectal cancer that spread to the liver and then recurred back in the original site. My doctors say I will be lucky to make 3 years, I need to fight this because there is no way I can leave my son at 9 yrs old, just simply no way. I get terrified at the thought as I am sure all of you mums do too. I am so glad to have found this site and I really hope to be involved and get to know everyone really well. Take care, peace and healing to all. J x

Comment by Sue O'Keefe on June 5, 2008 at 5:51pm

G'Day,
Checking in.. so glad of this P.C. I am having a difficult time right now and if it wasn't for P.C. I know I would be alot worse. My mind is just driving me nuts. Saw the shrink and she just told me to let it all out and cry. Apparently its all the stress of the last....10 months coming to a head. You think wow i can no think when the chemo head goes. But do I have to think so much anyway going to check out now. Luv you all Sue.

Comment by Beverly on June 4, 2008 at 1:01am

Hi Eric, not being diagnosed and all is probably the HARDEST part of your whole journey. That and maybe the waiting is also the HARDEST(waiting on appts, doctors, results, it all is hard bec. you feel like your'e in such limbo. I will pray for you--keep me posted and if you ever want to chat.

Comment by Sue O'Keefe on June 2, 2008 at 7:48pm

Help. my 15 year old is now needing help. How do I deal with it. I started a discussion on the main page in regards to this. Any help would be great. thanks sue

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